Friday, August 18, 2017

Re: what tests can you help me order re GI health, energy metabolism, heavy metals

my last visit to this clinic was when i limped in with gout and the intent to get tested for uric acid (which i advise everyone add to their annual 'extra tests' along with homocysteine, B2, B6), and the newest "routine" question they asked me after taking my vitals was "are you feeling depressed?" to which i know not to be honest with these freaking idiots.

whatever you do, you must not let on at all to any rx-doctors how all this warped genetic biochemistry i am discovering (thanks to me, not them), causes a lifetime of toxic accumulation and physical metabolic depression affecting every cell tissue system incl brain/mind/mood and how pain drains too. 

so i looked at her funny and she said it was "routine" yet nobody asked me before, so i gotta ask around if others are being asked this one, if its a 'new routine' everywhere which could very well be or if its just with folks who visit clinics more than twice a year or have a dozen symptoms, even if every test i ask for proves i wasn't crazy and that my biochemistry is whack, nowhere close to optimum.   

i said: "nope, not today."  if we know more about our own body/mental states, when we don't feel right, when we can think/research fine, and when we know they're rx solutions can't help us really anyway, that any honesty in that area they will only use against us, then the answer when anyone in scrubs or white coat asks re depression should be a firm:  "no, not at all".  anything else and it goes in your record (i've seen it).

they will put you in that box permanently, and judge everything else you ever say as imaginary or "stress-related" and all your future visits will be a waste of time.  i go to clinics only to get insurance-covered tests run, not to get rx pills i do not plan to take.  i plan to take my test results to a functional medicine nutritionist, metabolic specialist or naturopath, broader picture practitioners, who have more clues and solutions.  you can be more honest with them as their approaches are broader, they understand more.  

i finally did track down my fly-by-night neurologist, will see him next week, his advise mostly resonates, except when he says 'drink water never coffee or beer', he also seemed to like 'electro-shocking' me for 30min then wanted to put needles in my nerves to which i said 'no way' crazy guy.  are they all sadists?

On Thu, Aug 17, 2017 at 10:11 AM, wolf <wolf@amplifyroi.com> wrote:
i sent my PCP this 'followup' mail via their online 'message system' over a week ago and as anticipated, received no response yet... maybe i should send such notes to my insurance instead - maybe it would accomplish more...

after a week of waiting and the need to get next battery tests rolling related to resolving ongoing gout/gut issues which i believe are related, i drafted a shorter note specific to 3 test which i will print and hand-deliver on my next visit to clinic... 

to potentially fast-track the right tests, i've decided to print the script i want to relate to practitioners re symptoms/tests (as they clearly dont track any history) and hand-deliver it into my medical file from now on, no matter how corny it is.


primary care provider, PA

the neurologist, wasted a couple months by ordering same lipid panel you did, adding only one good test: vit D which was 'out of range' low as anticipated per MTHFR literature.   their operation is pretty chaotic too.

you were right, some of my joint pain stiffness in hips knees ankles and all the odd foot pain of last few years appears related to arthritis, tests now confirming gout aka high uric acid.  and that, like fungal dominance and gut/GI health issues, heavy metal toxicity, neuropathic, gastrointestinal, energy metabolism impairments, are associated to the 50% impaired MTHFR enzyme and the 50% impaired methylation/detox pathway validated by tests results.

so i've established with you and the clinic prior:  a few years of faint/blurry spells, a decade of jointpain, 3 decades of GI issues gas/bloating IBS since college late 80s, very low energy, high joint pain, now gout.

baseline tests i seek:  
Copper, Zinc, Ceruloplasmin
Iron & TIBC, Ferritin & Transferrin
Histamine (whole blood) 

all of these tests are offered through quest and lab corp, the first 6 bundled into panels i can order via walkinlab, healthlabs or request-a-test for $175, but can you help me order any of these?  

to get to the root of my 3 decades of gas/bloating/GI and energy/metabolic issues, i seek a few tests i.e. organic acids and amino acids tests, and whatever you can suggest or order.  

i also seek to test for heavy metals and toxins, specifically:  aluminum, lead, mercury, ammonia.   

all these tests out-of-pocket add up fast, so i'd love to know which of these you could help order on my behalf, so it gets auto-processed through my insurance, and i'd know instantly which ones they will cover, which not. 

with you, and clinics prior, i've already taken the basic first line tests several times: LP, CMP, CBC, so i need next line tests specific to GI health, energy metabolism, etc.

sincerely, 
wolf

ps.  you referred me once to a GI doctor who wanted to sedate me, pry my mouth open and run tubes down my throat to 'evaluate', but i just want simple urine, stool and bloodwork done, not invasive procedures.  

ps. the neurologist is a chaotic fly-by-night operation, fails to return calls, was 1hr late to first appt., says just take B12, and to stop beer coffee marijuana as any/all stimulants wear out/kill neuroreceptors and just drink water to 'put him out of business'.  he also suggested i take supplements, baby aspirin, change diet/lifestyle and make best effort to get off bprx.  a bit odd to hear all that.  i took an MRI and a neck blood flow ultrasound months ago, haven't heard back yet.  its like he went missing, that's how chaotic.

ps. i found 3 local MTHFR practioners, if i give your their clinic contact info, is it possible you could refer me?  



Virus-free. www.avast.com



--

Wolfgang Lawrence Kellner 
925-448-5805 | wolf@amplifyroi.com 
linkedin.com/in/wolflawrencekellner

tip:  if watching videos, you can slow it down 10% with each click of S key, speed it up 10% with each click of D keyjump back 5sec with J key, jump fwd 5sec with L keystop/start it with K key

COMT V158M rs4680 AG +/-  COMT H62H rs4633 CT +/-  VDR Bsm rs1544410 CT +/-  
VDR Taq rs731236 AG +/-  MTHFR C677T rs1801133 AG +/-   MTHFR A1298C rs1801131 GT +/-  
MTR A2756G rs1805087 AG +/-  MTRR A66G rs1801394 GG +/+  BHMT-02 rs567754 CT +/-  
BHMT-08 rs651852 CT +/-  CBS A360A rs1801181 AG +/-  SOD2 A16V rs4880 GG +/+  

No comments:

Post a Comment

20–33% PwP have mild cognitive impairment (MCI) at time of diagnosis, but 83 percent of those still living with the disease after 20 years have dementia. | Parkinson’s Dementia: Stages, Behavior, Symptoms, and More

Dementia is a condition that causes a decline in thinking, reasoning, and problem-solving.  About 20–33% PwP have  mild cognitive impairment...