Tuesday, April 27, 2021

Fwd: mthfr neuropathy posture strength specialists

MTHFr is known to cause an array of neuropathies incl dozens, if not all, my symptoms.  mom, keeps asking what causes neuropathy which i addressed in a jun 2019 blog post because even i forget.  in short, my MTHFr impaired methylation and the associated vitamin/enzyme deficiency can lead to neuropathy:

my neuropathic journey: renegade doctors and the bright side | What Causes Neuropathy & How To Treat It (incl B12 Deficiency)  6/2019

so all the specialists to treat me with diet, supplements, medicine and therapies need to be versed in my MTHFr gene/enzyme methylation impairment that can't process/convert (or benefit from) typical vitamin Bs, so need methylated B vitamins.

most neurologists will not be up enough on this to help do more than measure/confirm hunches and advise more water less alcohol caffeine sweetener stimulants and prescribe strong rx im not open to try ex seizure pharmaceuticals that often work for 6 months, introduce new issues then slowly stop working.  

I try to make my vitamin shake daily, but it physically pains me to make it (must lay down afterward) and i dont do well with strict routines, so tend to miss 2 oor 3 days/week.  and i still haven't tried the recommended methylated B vitamin injections suggested by Kate Troup naturopath several times over roughly 3 years as i wanted to see if oral vitamins would work.  she's in australia but can organize a local practitioner to administer it.  she is my affordable telehealth naturopath who knows my mthfr, similar talent locally cost much more (see list below).  i havent seen her since feb 2020.

the other specialists I could use:

1.  a core strength Pilates / Trainer to help optimize posture alignments.  steve schwab raved about one in lafayette.

2.  one to get me off blood pressure RX safely without requiring a no-meat vegetarian diet to do it.

3.  one who knows all types of neuropathy, but also MTHFr methylation impairments and how it causes neuropathy.


Danville Neuropathy Center now features the SANEXAS healing therapy (the flier says):
  • healing regenerating nerve visibly on film 
  • restore normal sensation
  • feel better do more, return to a more active lifestyle.
they told me briefly how does it works (over the phone):
1. a nurse practitioner measures nerve status/response.
2. then takes biopsy #1 of specific tissue (ex nerve).
3. then give vit b complex injections to target site.  (will visit to see if they know MTHFr and can dose methylated B vitamins instead)
4. admin sanexas treatment to interact/stimulate the vitamins.
5. take biopsy #2 to show progress.


shortlist of specialists 
this list of people from whom i've learned key health clues incl MTHFr via their articles (from my directive):

Dr. Thomas Cowan MD (advocates for fever/pneumonia as natural healing activity to allow vs impede)
Dr. Rashid A. Buttar DO (osteopath, chronic pain/disease):  http://www.drbuttar.com

Dr. Kate Troup ND (naturopath): mthfrsupport.com.au/2016/10/kate-troup-naturopath

bay area
Dr. Josh Axe DC, DNM, CNS: https://draxe.com/about-dr-josh-axe
Dr. Ben Lynch ND: http://mthfr.net/about/dr-lynch
Chris Kresser (acupuncturist): https://chriskresser.com/about
  
Kat Toups, MD, DFAPA (functional medicine):  http://www.bayareawellness.net/
Dr. Carol Banyas: https://www.carolbanyasmd.com/  

neuroscience references:
Dr. Charles Parker holistic neuroscience at CorePsych.com and drcharlesparker.com
Dr Andrew Kaufman MD (forensic psych):  https://www.andrewkaufmanmd.com/
Dr. Mark Steinberg, brainwave neurofeedback, symptoms/pain: marksteinberg.com







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