MTHFr is known to cause an array of neuropathies incl dozens, if not all, my symptoms. mom, keeps asking what causes neuropathy which i addressed in a jun 2019 blog post because even i forget. in short, my MTHFr impaired methylation and the associated vitamin/enzyme deficiency can lead to neuropathy:
my neuropathic journey: renegade doctors and the bright side | What Causes Neuropathy & How To Treat It (incl B12 Deficiency) 6/2019
so all the specialists to treat me with diet, supplements, medicine and therapies need to be versed in my MTHFr gene/enzyme methylation impairment that can't process/convert (or benefit from) typical vitamin Bs, so need methylated B vitamins.
most neurologists will not be up enough on this to help do more than measure/confirm hunches and advise more water less alcohol caffeine sweetener stimulants and prescribe strong rx im not open to try ex seizure pharmaceuticals that often work for 6 months, introduce new issues then slowly stop working.
I try to make my vitamin shake daily, but it physically pains me to make it (must lay down afterward) and i dont do well with strict routines, so tend to miss 2 oor 3 days/week. and i still haven't tried the recommended methylated B vitamin injections suggested by Kate Troup naturopath several times over roughly 3 years as i wanted to see if oral vitamins would work. she's in australia but can organize a local practitioner to administer it. she is my affordable telehealth naturopath who knows my mthfr, similar talent locally cost much more (see list below). i havent seen her since feb 2020.
the other specialists I could use:
1. a core strength Pilates / Trainer to help optimize posture alignments. steve schwab raved about one in lafayette.
2. one to get me off blood pressure RX safely without requiring a no-meat vegetarian diet to do it.
Danville Neuropathy Center now features the SANEXAS healing therapy (the flier says):
- healing regenerating nerve visibly on film
- restore normal sensation
- feel better do more, return to a more active lifestyle.
they told me briefly how does it works (over the phone):
1. a nurse practitioner measures nerve status/response.2. then takes biopsy #1 of specific tissue (ex nerve).3. then give vit b complex injections to target site. (will visit to see if they know MTHFr and can dose methylated B vitamins instead)4. admin sanexas treatment to interact/stimulate the vitamins.5. take biopsy #2 to show progress.
shortlist of specialists
this list of people from whom i've learned key health clues incl MTHFr via their articles (from my directive):
Dr. Thomas Cowan MD (advocates for fever/pneumonia as natural healing activity to allow vs impede)
Dr. Rashid A. Buttar DO (osteopath, chronic pain/disease): http://www.drbuttar.com
Dr. Kate Troup ND (naturopath): mthfrsupport.com.au/2016/10/kate-troup-naturopath
bay area
Dr. Josh Axe DC, DNM, CNS: https://draxe.com/about-dr-josh-axe
Dr. Ben Lynch ND: http://mthfr.net/about/dr-lynch
Chris Kresser (acupuncturist): https://chriskresser.com/about
Dr. Ben Lynch ND: http://mthfr.net/about/dr-lynch
Chris Kresser (acupuncturist): https://chriskresser.com/about
Kat Toups, MD, DFAPA (functional medicine): http://www.bayareawellness.net/
Dr. Carol Banyas: https://www.carolbanyasmd.com/
neuroscience references:
Dr. Charles Parker holistic neuroscience at CorePsych.com and drcharlesparker.com
Dr Andrew Kaufman MD (forensic psych): https://www.andrewkaufmanmd.com/
Dr. Mark Steinberg, brainwave neurofeedback, symptoms/pain: marksteinberg.com
Dr. Carol Banyas: https://www.carolbanyasmd.com/
neuroscience references:
Dr. Charles Parker holistic neuroscience at CorePsych.com and drcharlesparker.com
Dr Andrew Kaufman MD (forensic psych): https://www.andrewkaufmanmd.com/
Dr. Mark Steinberg, brainwave neurofeedback, symptoms/pain: marksteinberg.com
No comments:
Post a Comment